We are a network of parent/patient advocates and nonprofits dedicated to helping families impacted by metachromatic leukodystrophy.

Our partners include Chloe’s FightLove for Loie and The Hammond FamilyThe Sullivan Family and FriendsGavin Flying for a Cure, The Calliope Joy Foundation/Cal’s CupcakesFundacion Lautaro te Necesita (Argentina)Leukodystrophy Resource and Research Organization (Australia)Bethany's Hope (Canada), and MLD families around the globe.

Additional funding was provided by an unrestricted grant from Orchard Therapeutics.


Additional support was made possible by Chloe’s Fight, The Sullivan Family and FriendsGavin Flying for a Cure and The Calliope Joy Foundation.

You are not alone, please contact us and we will have a family ambassador contact you.

We will also send you and your loved one a special care package that includes Loie’s Disease, a children’s book to explain leukodystrophy to children, and the “Living with Leukodystrophy” medical resource guide.

Contact Us

PO Box 2866

Bala Cynwyd PA

19004 USA


We are grateful for the support of our friends and partners:

Support for Cure MLD comes from an unrestricted grant from Orchard Therapeutics. 

© 2019 by Cure MLD | Proudly created by CAZ Media Design

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