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NEWLY DIAGNOSED

Coming Soon

Newly Diagnosed? Reach out here

Getting information:

One of the fastest ways to learn about MLD and treatment options is to enroll in the MLD natural history study at the Children’s Hospital of Philadelphia (CHOP).

 

There is no travel or cost associated with the natural history study. Sharing your medical records with specialists at CHOP (who work with pediatric and adult patients) can help answer your questions and get you access to resources and information you need to help your loved one impacted by MLD.

CHOP Leukodystrophy Center

Online Referral Survey

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You are not alone, please contact us and we will have a family ambassador contact you.

We will also send you and your loved one a special care package that includes Loie’s Disease, a children’s book to explain leukodystrophy to children, and the “Living with Leukodystrophy” medical resource guide.

Lorie's Disease | Cure MLD
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