Latest Articles | Cure MLD

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Sep 3, 2022
3 min

Massachusetts Recognizes Leukodystrophy Awareness Month & Lights Up for Leukodystrophy

curemld

Mar 25, 2022
2 min

Inspirational Child with MLD, Calliope Joy, Passes Away

curemld

Sep 22, 2021
2 min

Jim Flynn Runs a Marathon to Cure MLD

curemld

Aug 10, 2021
4 min

Cure MLD, The Calliope Joy Foundation and NORD Launch a Research and Engagement Study of MLD

Research study is open to participants worldwide to advance understanding and treatments for Metachromatic Leukodystrophy, a recessive...

curemld

Feb 27, 2020
1 min

Mothering Cal

curemld

Feb 20, 2020
1 min

Gene Therapy Trial Wrenches Families as One Child’s Death Saves Another

curemld

Feb 12, 2020
1 min

I can’t save my daughter from a terminal illness. But we can help save other children from the same

curemld

Feb 5, 2020
1 min

How much would you pay for the miracle of gene therapy?

curemld

Jan 29, 2020
1 min

Five times an Illinois health insurer rejected out-of-state treatment for a 4-year-old

curemld

Jan 22, 2020
1 min

7 Patients Who Are Leading the Charge Against Their Rare Disease

curemld

Jan 15, 2020
1 min

Medicaid covers sick or dying children. But it takes ‘going to battle’ to get it

curemld

Jan 8, 2020
0 min

MLD father Les Martin's inspiring work for newborn screening.

curemld

Jan 8, 2020
1 min

Read Cure MLD co-founder's oped for STAT

curemld

Jan 8, 2020
1 min

Chicago Tribune chronicles MLD mom's fight for Medicaid approval. Read the story.

curemld

Jan 8, 2020
4 min

Why did we start Cure MLD?

curemld

Jan 8, 2020
3 min

A new decade brings new hope

curemld

Apr 12, 2019
1 min

Mothering Cal - What I learned from parenting a terminally ill child.

curemld

Apr 12, 2019
1 min

The Philadelphia Family Helping to Drive Research on MLD

curemld

Apr 12, 2019
1 min

IN THE NEWS

Massachusetts Recognizes Leukodystrophy Awareness Month & Lights Up for Leukodystrophy

Inspirational Child with MLD, Calliope Joy, Passes Away

Jim Flynn Runs a Marathon to Cure MLD

Cure MLD, The Calliope Joy Foundation and NORD Launch a Research and Engagement Study of MLD

Mothering Cal

Gene Therapy Trial Wrenches Families as One Child’s Death Saves Another

I can’t save my daughter from a terminal illness. But we can help save other children from the same

How much would you pay for the miracle of gene therapy?

Five times an Illinois health insurer rejected out-of-state treatment for a 4-year-old

7 Patients Who Are Leading the Charge Against Their Rare Disease

Medicaid covers sick or dying children. But it takes ‘going to battle’ to get it

MLD father Les Martin's inspiring work for newborn screening.

Read Cure MLD co-founder's oped for STAT

Chicago Tribune chronicles MLD mom's fight for Medicaid approval. Read the story.

Why did we start Cure MLD?

A new decade brings new hope

Mothering Cal - What I learned from parenting a terminally ill child.

The Philadelphia Family Helping to Drive Research on MLD

To really help a family in crisis, here are a few good rules to follow

ConnectING FAMILIES

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