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Sep 22
2 min

Jim Flynn Runs a Marathon to Cure MLD

Aug 10
4 min

Cure MLD, The Calliope Joy Foundation and NORD Launch a Research and Engagement Study of MLD

Research study is open to participants worldwide to advance understanding and treatments for Metachromatic Leukodystrophy, a recessive...

Feb 27, 2020
1 min

Mothering Cal

Feb 20, 2020
1 min

Gene Therapy Trial Wrenches Families as One Child’s Death Saves Another

Feb 12, 2020
1 min

I can’t save my daughter from a terminal illness. But we can help save other children from the same

Feb 5, 2020
1 min

How much would you pay for the miracle of gene therapy?

Jan 29, 2020
1 min

Five times an Illinois health insurer rejected out-of-state treatment for a 4-year-old

Jan 22, 2020
1 min

7 Patients Who Are Leading the Charge Against Their Rare Disease

Jan 15, 2020
1 min

Medicaid covers sick or dying children. But it takes ‘going to battle’ to get it

Jan 8, 2020
0 min

MLD father Les Martin's inspiring work for newborn screening.

Jan 8, 2020
1 min

Read Cure MLD co-founder's oped for STAT