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Join date: Apr 13, 2019
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Sep 3, 2022 ∙ 3 min
Massachusetts Recognizes Leukodystrophy Awareness Month & Lights Up for Leukodystrophy
September 2nd, 2022 The Longfellow Bridge in Boston, MA, lit up in blue today in honor of Leukodystrophy Awareness Month. Just days...
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Mar 25, 2022 ∙ 2 min
Inspirational Child with MLD, Calliope Joy, Passes Away
Calliope Joy Carr defied all odds by living with rare genetic disease for 12 years (Bala Cynwyd, PA) — Calliope ‘Cal’ Joy Carr, 12, who...
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Sep 22, 2021 ∙ 2 min
Jim Flynn Runs a Marathon to Cure MLD
September 22, 2021 | MR Photo: Jim's daughter joins him to a run a block around mile 15. On a sunny day in September, Jim Flynn ran his...
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